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rarediseasesnetwork.org Home | Rare Diseases Clinical Research Network
The Rare Diseases Clinical Research Network (RDCRN), an initiative of the Office of Rare Diseases Research, NCATS, is made up of 21 disease research groups (consortia) and a Data Management and Coordinating Center that work together to improve...
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eurordis.org EURORDIS - The Voice of Rare Disease Patients in Europe
EURORDIS - Rare Diseases Europe, is a non-governmental patient-driven alliance of rare disease patient organisations representing 869 rare diseases patient organisations in 71 countries. We are dedicated to improving the quality of life of all people...
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rarediseaseday.org Rare Disease Day ® 2020
The main objective of Rare Disease Day is to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients, and to reinforce their importance as a public health priority.
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